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These pages are dedicated to the loving memory of Jesse Steven Reilly Hanham, Dillon Rollins, Jessica Kennedy and Jacob never to be forgotten.

This page was created to help parents and caregivers with children who have Optic Nerve Hypoplasia (O.N.H.) and Septo-Optic Dysplasia, (S.O.D.), also known as deMorsier syndrome . Together, we can learn more about this rare syndrome and come to a better understanding of our children.

The Focus Family extends around the world. We have support groups in the UK, Australia, Canada and the US. We offer a Newsletter and Email support group. There are currently 300+ parents, grandparents, adults and professionals who offer their support.

You can join our Email support group by signing up at this link to topica.com.
Sign up for the newsletter by sending us your Address at
We hope to hear from you.

For more information Email us at .

This website has been designed to help empower parents of children with ONH/SOD. All the information herein is subject to opinion. If you suspect your child may have ONH/SOD it is recommended that you seek professional advice from a certified pediatric ophthalmologist. No one individual or company connected with this website assumes any liability or responsibility
for it's contents.