These pages are dedicated to the loving memory of Jesse Steven Reilly Hanham, Dillon Rollins, Jessica Kennedy and Jacob never to be forgotten.

For Parents, Carers, Families and professionals of children with Septo Optic Dysplasia or Optic Nerve Hypoplasia UK Division of FOCUS (For our Children's Unique Sight) Affiliated to Contact A Family.

Who We Are & What We Do

SOD/ONH Support Network has been started by a small number of families who have children with the condition Septo Optic Dysplasia or Optic Nerve Hypoplasia.

We aim to:

• Provide a point of contact to any person within the UK who wishes to know more about the syndrome septo optic dysplasia or optic nerve hypoplasia.
• Provide information about this syndrome to parents, families, carers and professionals.
• Link families who have children with septo optic dysplasia or optic nerve hypoplasia, by location, age or similarity of syndrome characteristics.
• Organise an annual conference, to enable families who have children with septo optic dysplasia or optic nerve hypoplasia to meet, and to have access to speakers who are specialists in this condition.
• Work with professionals involved in septo optic dysplasia and optic nerve hypoplasia, in order to compile a set of guidelines to ensure correct medical intervention at all times throughout the children's lives.

For more information please contact:

Alison Baker
E-mail:

Annie Bloomfield
E-mail:

Malcolm Painter
E-mail:

This website has been designed to help empower parents of children with ONH/SOD. All the information herein is subject to opinion. If you suspect your child may have ONH/SOD it is recommended that you seek professional advice from a certified pediatric ophthalmologist. No one individual or company connected with this website assumes any liability or responsibility
for it's contents.